For Patients

The Agency for Health Care Administration (AHCA) Selects CRISP Shared Services as Florida HIE’s New Technology and Operations Partner

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FAQs

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For Patients

What kind of information is shared through the HIE?

The Florida HIE shares clinical information that helps your healthcare providers give your better, more informed care. This may include; lab results, radiology reports, hospital visits, clinical notes, medications, allergies, and immunizations.

Who can see my health information in the HIE?

Only healthcare providers and organizations directly involved in your care can access your health information through the Florida HIE. This may include: Your doctors and care teams, hospitals and emergency departments, pharmacists, care coordinators, and health plans (when necessary and authorized to do so).   

Can I control who sees my information?

Yes, patients can choose not to make their data available in the HIE. This action is called opting-out. If you opt-out of the HIE, none of your data will be shared via the HIE. Your data may still be shared for public health reporting purposes and for the prescription drug monitoring program (PDMP) even if you opt-out of the HIE. PDMP and public health reporting are required by law.

If I have opted out, can I opt back in at a later time?

Yes, you can opt-in to the HIE at any time, even if you previously opted-out. Patients who want to opt back into CRISP should call (866) 987-5514 or email info@flhie.org. Unfortunately, we cannot retrieve the information that was deleted when you opted out, so your historical clinical information will not be in the Florida HIE and the only data available will be data collected after you have reversed your opt-out.

Can I see what information about me has been accessed through the HIE?

Yes. You can request an Accounting of Disclosures from the Florida HIE – a record of who has accessed your information through the HIE and when.

Is my health information secure and private?

Yes. The Florida HIE uses advanced security measures and follows strict federal and state privacy laws to protect your health information, including HIPAA. Security protection includes the use of encryption during transmission and storage, and secure authentication – meaning only authorized healthcare providers with verified credentials can view your information.

What is 42 CFR Part 2 and how does it affect my substance use disorder treatment information?

42 CFR Part 2 is a federal regulation that provides special privacy protections for information relating to substance use disorder (SUD) treatment. These protections are stronger than standard healthcare privacy laws and give you more control over who can view your SUD treatment records. It requires an additional step of the patient consenting for their information to be shared. Your SUD treatment information cannot be shared unless you give specific written consent.

Patient Services

What is a Health Information Exchange?

A Health Information Exchange (HIE) is a secure electronic way for health care providers and organizations to share clinical information about their patients. In Florida, we have the Florida Health Information Exchange, often referred to as the Florida HIE or the HIE.

Why do health care providers have to share clinical information?

When you need to receive care, it is critical that your health care provider has the most recent information about your health. Your provider can search the Florida HIE for your health information to reference while providing your care. There are many reasons providers share patients’ clinical information. For example, it helps ensure against repeating tests or receiving medications that negatively interact with each other. Providers may also share your data to ensure everyone is on the same page when providing you with health care. 

What if I don’t want to share my clinical information through the Florida HIE?

You may follow the directions below to opt out of sharing clinical information through the Florida HIE. This does not remove your data from the electronic health record systems that may be used by your providers, it merely prevents your data from being shared with the Florida HIE.

What happens once I complete my opt-out form?

Your health information will be deleted from the Florida HIE within 5 business days. Once your data is deleted, your provider will not be able to search in the Florida HIE for your health information. However, some providers may use other electronic methods to send information about their patients to each other directly. This is the same as when providers share information by fax or mail.

If a provider searched the Florida HIE for your information and put that information into their medical records before you completed your opt-out form, that information will remain in that provider’s medical records.

What if I change my mind and want to share my clinical information?

We are happy to help. Please call us at (866) 987-5514 or reach out via info@flhie.org so we can make that change for you. Unfortunately, we cannot retrieve the information that was deleted when you opted out, so your historical clinical information will not be in the Florida HIE and the only data available will be data collected after you have reversed your opt-out.

Are there exceptions to my choice to opt-out?

Yes. Public health reporting, such as the reporting of infectious diseases to public health officials, will still occur through the Florida HIE after you decide to opt out. Also, Controlled Substances information, as part of the Prescription Drug Monitoring Program, will continue to be available through the Florida HIE to licensed providers.

Do I have to fill this form out every year?

No, you only need to fill it out once for yourself. We will keep this information and your decision in place until you decide to opt back in.

If I live in another state and only get care in Florida OR I only live in Florida part-time, will my data be removed from other states as well?

No, the Florida HIE opt out form only applies to care delivered in Florida. If you would like your data removed from another state’s HIE then you will need to reach out to that HIE directly.

Opt-Out Form

Please complete this form if you do not want to share your clinical data in the Florida Health Information Exchange.

LINK COMING SOON

If you wish to reverse your decision, you may opt back in at any time by calling 866-987-5514.

Upcoming Events

Topic: AI in the Health Information Exchange Ecosystem

Time: Apr 9, 2026 01:00 PM Eastern Time (US and Canada)

Meeting ID: 898 3561 4567
Passcode: 040926

Accounting of Disclosures

Your Right to an Accounting of Disclosures

You have the right to request an Accounting of Disclosures (AoD) – a written report listing certain times when your health information was accessed or shared through the Florida HIE. This right is established under the HIPAA Privacy Rule and applies to all covered entities participating in Florida’s health information networks. 

What Your AoD Will Show

Your Accounting of Disclosures may include:

  • The names of individuals or organizations that accessed your data through Florida HIE systems outside standard care operations. 
  • The date of each disclosure, as required under HIPAA.  
  • The purpose of the disclosure, when required by federal law.
  • Disclosures required by Florida law, including those related to public health reporting, ADT submissions, or certain mandatory facility obligations under FEHREA. 

How to Request Your AoD

To request an Accounting of Disclosures in Florida please email info@flhie.org and include your name and contact details.